Jinekolojik Kanserlerin Bakım Veren Aile Üyeleri Üzerindeki Etkileri

Yazarlar

Pınar Serçekuş
https://orcid.org/0000-0002-9326-3453
Okan Vardar

Özet

Bu çalışma, jinekolojik kanser tanısı alan kadınların bakım veren aile üyeleri üzerindeki fizyolojik, psikolojik, sosyal ve ekonomik etkileri incelemektedir. Kanser tanısı tüm aileyi sarsan travmatik bir süreç olup, Türk kültüründe aile bağları nedeniyle yakınlar hızla "bakım veren" rolünü üstlenmektedir. Kadının ailedeki merkezi ve düzenleyici rolünden bakıma muhtaç konuma geçmesi, aile içi dinamikleri bozarak özellikle eşler ve yetişkin çocuklar üzerinde ağır bir "bakım yükü" oluşturmaktadır. Bakım verenler zamanla kilo kaybı, yorgunluk, uykusuzluk, mide ağrıları gibi fizyolojik sorunların yanı sıra anksiyete, depresyon, suçluluk, gelecek kaygısı ve sosyal izolasyon gibi psikolojik/sosyal zorluklar yaşamaktadır. Ayrıca ev-hastane ulaşımı, ilaç masrafları ve işten ayrılma gibi nedenlerle ciddi ekonomik sıkıntılarla karşılaşmaktadırlar. Bu süreçle baş etmek için dikkati başka yöne çekme, dua/ibadet etme ve kadercilik gibi manevi yollara başvurmakta; çevrelerinden ve sağlık personelinden sosyal destek almaya ihtiyaç duymaktadırlar. Sağlık çalışanlarının bu yükün bilincinde olması ve erken palyatif onkoloji bakımı ile psiko-eğitimsel müdahaleleri sürece entegre etmesi, bakım verenlerin yaşam kalitesini artırmak ve yüklerini hafifletmek açısından kritik önem taşımaktadır.

This study examines the physiological, psychological, social, and economic effects of gynecological cancer diagnoses on caregiving family members. A cancer diagnosis is a traumatic process shaking the entire family, and due to strong family ties in Turkish culture, relatives quickly assume the "caregiver" identity. The transition of the woman from her central, organizing role in the family to a position of needing care disrupts family dynamics, creating a heavy "caregiver burden" especially on spouses and adult children. Over time, caregivers experience physiological problems such as weight loss, fatigue, insomnia, and stomach aches, alongside psychological and social difficulties including anxiety, depression, guilt, future anxiety, and social isolation. Moreover, they encounter serious financial distress due to home-hospital transportation, medication expenses, and leaving employment. To cope with this process, they utilize spiritual methods like distraction, prayer, and fatalism, and require social support from their immediate environment and healthcare personnel. It is critical for healthcare professionals to be aware of this burden and integrate psychoeducational interventions and early palliative oncology care into the process to improve the caregivers' quality of life and alleviate their burden.

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